Ehlers-Danlos Syndrome

Pages From My Life | Living With Ehlers-Danlos Syndrome

Weakness plagued my body.    Move, arms. Move.    Quivering, my muscles made a valiant effort and my arm made a spastic and uncontrolled flail to the side. Not exactly what I was aiming for but the fact that they still could move was good enough.    Searing pain was spreading from the base of my skull to the top of my head.    What did I even do to cause this?

Ehlers-Danlos Syndrome

Dear Support System | Life With Ehlers-Danlos Syndrome

I can only imagine how difficult it is to watch your loved one deteriorate before your eyes, knowing that there's little you can do to make them better. I want to take the time to say THANK YOU. The words hardly seem to touch the level of gratitude I hold within my heart, but the only way I can think of to show the thankfulness within me is something like, "aslfjaslkdjfa;lskjdfa;lskjdflsjlfkjdlskjdflah!!!" and that's just not very nice to look at.