Ehlers-Danlos Syndrome

The Importance of Having Friends Who “Get It” | Life With A Chronic Illness

Having a chronic illness is hard. Having a chronic illness with no friends who understand what you're going through? Even harder.  Ehlers-Danlos Syndrome affects every part of my life. Physically, emotionally, financially...it's rough. For a long time I felt isolated from the rest of the world. Whenever I try and explain what I feel each day… Continue reading The Importance of Having Friends Who “Get It” | Life With A Chronic Illness

Ehlers-Danlos Syndrome

Dear Support System | Life With Ehlers-Danlos Syndrome

I can only imagine how difficult it is to watch your loved one deteriorate before your eyes, knowing that there's little you can do to make them better. I want to take the time to say THANK YOU. The words hardly seem to touch the level of gratitude I hold within my heart, but the only way I can think of to show the thankfulness within me is something like, "aslfjaslkdjfa;lskjdfa;lskjdflsjlfkjdlskjdflah!!!" and that's just not very nice to look at.

Ehlers-Danlos Syndrome

When I smile and say, “I’m fine” |Chronic Illnesses

"Hey! How are you? How've you been?"  Common questions, ones we hear all the time. The average person can pause for a split second and assess if they're great, ok, or having a bad day. For someone with a chronic illness, it's a complicated question.  Our version of "great", "good", or a "bad day" can be drastically different from most people's.