Ehlers-Danlos Syndrome

Pages From My Life | Living With Ehlers-Danlos Syndrome

Weakness plagued my body.    Move, arms. Move.    Quivering, my muscles made a valiant effort and my arm made a spastic and uncontrolled flail to the side. Not exactly what I was aiming for but the fact that they still could move was good enough.    Searing pain was spreading from the base of my skull to the top of my head.    What did I even do to cause this?

Ehlers-Danlos Syndrome

When I smile and say, “I’m fine” |Chronic Illnesses

"Hey! How are you? How've you been?"  Common questions, ones we hear all the time. The average person can pause for a split second and assess if they're great, ok, or having a bad day. For someone with a chronic illness, it's a complicated question.  Our version of "great", "good", or a "bad day" can be drastically different from most people's. 

Ehlers-Danlos Syndrome

Ehlers-Danlos Syndrome: What’s that?

"prone to frequent dislocations" ...Yes, very true...but what the list doesn't say is that sometimes all it takes is a regular step, lifting a (small) glass of water, a simple roll over in bed, or a hard laugh.