Ehlers-Danlos Syndrome

Pages From My Life | Living With Ehlers-Danlos Syndrome

Weakness plagued my body.    Move, arms. Move.    Quivering, my muscles made a valiant effort and my arm made a spastic and uncontrolled flail to the side. Not exactly what I was aiming for but the fact that they still could move was good enough.    Searing pain was spreading from the base of my skull to the top of my head.    What did I even do to cause this?

Ehlers-Danlos Syndrome

The Importance of Having Friends Who “Get It” | Life With A Chronic Illness

Having a chronic illness is hard. Having a chronic illness with no friends who understand what you're going through? Even harder.  Ehlers-Danlos Syndrome affects every part of my life. Physically, emotionally, financially...it's rough. For a long time I felt isolated from the rest of the world. Whenever I try and explain what I feel each day… Continue reading The Importance of Having Friends Who “Get It” | Life With A Chronic Illness